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Resources

Resources for Families and Caregivers

Plain-language guides on Pennsylvania disability services, supports coordination, behavior support, respite, transition planning, and aging with an intellectual disability.

Latest

Aging with an Intellectual Disability: What to Watch For

People with intellectual disabilities are living significantly longer than they did a generation ago — a genuine, hard-won achievement. It has also created a population that neither Pennsylvania’s disability service…

Transition Planning: What Happens After Age 21 in PA

For families of a young person with autism or an intellectual disability, there’s a specific kind of anxiety that starts building years before it actually arrives: the moment school-based services…

What Does a Supports Coordinator Actually Do in PA?

If you’re new to Pennsylvania’s disability services system, you’ve probably already heard the term “Supports Coordinator” — usually shortened to SC — and you may have one assigned to your…

Respite Care in PA: How to Access Your Authorized Hours

Here’s something we hear constantly from families: they had no idea respite care was already available to them. It sat in their Individual Support Plan, authorized and funded, completely unused…

Signs Your Adult Child May Need Behavior Support

Behavior changes in an adult with autism or an intellectual disability are often the last thing families want to talk about — there can be guilt, exhaustion, or a sense…

 How to Get ODP Waiver Services in Pennsylvania

For families navigating a new diagnosis or a growing need for support, Pennsylvania’s system of waiver programs can feel like an entirely separate language — full of acronyms, agencies, and…

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